Original Research
Challenges experienced by mothers caring for children with cerebral palsy in Zambia
Submitted: 22 April 2015 | Published: 10 November 2015
About the author(s)
Carol Singogo, Department of Physiotherapy, University of the Western Cape, South AfricaMargaret Mweshi, Department of Physiotherapy, University of Zambia, Zambia
Anthea Rhoda, Department of Physiotherapy, University of the Western Cape, South Africa
Abstract
Background: Mothers caring for children with disability experience a number of challenges.
Aim: The aim of the study was to explore the challenges that mothers who cared for children with cerebral palsy (CP) living in Zambia experienced.
Methods: During a qualitative study the experiences of 16 conveniently sampled mothers of children with CP, from the Ndola district in Zambia, were explored by means of interviews. The responses were thematically analysed. All the necessary ethical considerations were upheld.
Results: Mothers experienced social isolation and marital problems, as well as negative attitudes from family, friends, community members and health care professionals. The physical environment created access challenges because of a lack of sidewalks, ramps, functioning lifts and small indoor spaces.
Conclusion: Mothers of children with CP feel socially isolated owing to a lack of support from family, community members, and health care providers. This social isolation was exacerbated by attitudes of others towards the mothers; it was felt that mothers were responsible for their children’s condition. Mothers also experienced marital problems as a result of having a child with CP.
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Crossref Citations
1. Qualitative research in physiotherapy: A systematic mapping review of 20 years literature from sub-Saharan Africa
Michael Kalu, Augustine Okoh, Chukwuebuka Okeke, Ebuka Anieto, Michael Ibekaku, Ukachukwu Abaraogu
Physiotherapy Theory and Practice vol: 39 issue: 4 first page: 704 year: 2023
doi: 10.1080/09593985.2022.2028952